April 15, 2024

The Senate Committee on Well being, Schooling, Labor and Pensions heard from folks dealing with the challenges of lengthy COVID Thursday.

“Having to cease working due to my well being was devastating. I get up each morning feeling drained, nauseous and dizzy,” mentioned Rachel Beale, an extended COVID affected person. 

“I used to be left to fend for myself from mattress that first 12 months, as a result of I didn’t match the profile of who was thought of excessive threat,” mentioned Angela Meriquez Vásquez, an extended COVID affected person. 

“Lengthy COVID stripped away my daughter’s life as she knew it,” mentioned Nicole Heim, a guardian of an extended COVID affected person. 

Touring throughout the nation for remedy, preventing insurance coverage corporations to pay for lengthy COVID specialists and easily discovering medical doctors who consider their continual sickness: These are the struggles that lengthy COVID sufferers say they face. That is on high of their many signs.

Gabriel San Emeterio of New York works with the advocacy group Lengthy COVID Justice.

“Even when COVID went away in the present day — lengthy COVID is right here to remain,” mentioned San Emeterio. 

He lives with myalgic encephalomyelitis (often called continual fatigue syndrome) and lengthy COVID — which share many signs, together with profound ache and exhaustion, low power ranges and sensitivity to sound and light-weight.

The sufferers all shared pleas for extra analysis on remedies, extra oversight of insurance coverage corporations, extra schooling for medical doctors and extra consciousness of these affected by continual signs. 

“Individuals want job safety. Individuals want time to relaxation,” mentioned San Emeterio.

Sens. Ed Markey and Bernie Sanders mentioned they wish to name on insurance coverage corporations to testify subsequent.


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